VP Shunt / Rare Disease Day
I started Monday New.s after the quote from Eleanor Roosevelt, "Do one thing everyday that scares you." in the spirit of trying one completely new thing every Monday, whether it scared me or not, as long as I learned something from it.
At the time, I knew my surgery was in place and I knew it would be life altering. But nothing prepared me for what was to come. I will write more about it, soon but in the meantime, here's a link to the little gadget that has me going, a VP Shunt and that qualifies for my Monday New.s from 20 September to 4 October 2010. Nothing I would recommend you to try, but if you've had to and if you'd like to share, please go right ahead.
On this note, please also pass the word around or lend your support about Rare Disease Day - Alone we are rare. Together we are strong.
February 28, 2011
http://www.facebook.com/RareDiseaseDay.US
2 comments:
I admire your strength to write about this experience. You're in my thoughts.
Pandora, my son who is pictured in my profile photo with me has had a VP shunt since infancy, placed there due to complications from prematurity. All the best to you!
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